A quarter of Claires life was spent in the hospital. Wineland uploaded videos in her personal vlog. Shed worked hard to get there, was focused on her self-care and getting stronger. She was a part of The Clairity Project, a website that featured educational and inspirational videos uploaded on YouTube. Its objective was to inspire people living with terminal illness, to lead a better life. Im grateful for my own head and for all the weird things in it. She did. Wineland was invited as a speaker at many international conferences. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. There is no passionate rant to be had here I am just happy and thought I would let you all know. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. She is my new hero, and forever. Paul Gray Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! At one point, Claire looked at her mom and said, "After you die, you're closer to everyone you love because you're part of everything," Yeager remembered.These words were a gift, a reminder that Claire would remain with her always, even after she was gone. "See y'all on [the] other side. Im grateful for the chance to keep being a person. Cystic fibrosis is a genetic condition with no known cure. Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'. The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. Wineland was a singer, artist, and composer. "She listened to the risks and the long list of side effects and emerged unfazed. Claire Wineland (19972018), inspiring speaker lived with cystic fibrosis, Jay Briscoe (19842023), Ring of Honor wrestler, C.J. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. Gregory Hines Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Im grateful for the chance to keep being a person. [2] According to the website, Wineland's activism aimed "to shed some light on what it's really like to be sick, and change the way we view illness and those living with it.[2], On August 7, 2017, after not uploading any videos for over a year, Wineland returned to YouTube with a new account under her real name. Claire Wineland Popularity Most Popular #8596 Born on April 10 #35 Entrepreneur #31 The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Your email address will not be published. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. When she was unable to create videos due to declining health, the company cut her off. The BBC is not responsible for the content of external sites. Her foundation said she had died peacefully, surrounded by family. Claires Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. "If my biggest problem in life was to be healthy, I'd be incredibly bored. She was a born artist and made her appearance in The Music Man, at around 4 years of age. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. She wanted to help other affected families too. Obituaries Section. Im just really overwhelmingly grateful for all of this. Jack Wild Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Youll be missed deeply. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. Claire Wineland (1997-2018), inspiring speaker lived with cystic fibrosis. "Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. A self-described goofball, she usually engaged people with humor and optimism. I'm grateful for the chance to keep being a person," she said. These words were a gift, a reminder that Claire would remain with her always, even after she was gone. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. She underwent more than 30 surgeries during her lifetime. Juli Briskman Height, Weight Age, Biography, Family, Facts & More, Amanda Segel Age, Boyfriend, Husband, Family, Biography, Facts & More, Heather Moore Age, Husband, Biography & More. Claire Wineland was known for her positivity, warmth, and humor. The moment you realize it's not about avoiding suffering; it's about making something from your suffering, you're incredibly freed. She passed away peacefully, with her parents by her side. She inspired countless people, invited -- no, demanded -- honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit.On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Its not for me and never has been.. The Plain Dealer. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. It hurts everything inside of me to make this video, she said into the camera. Founded a charity to help others suffering from the disease. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. According to doctors, she had a survival chance of 1%. 2023 BBC. The medical team that tended to her became family. She took great care to decorate her hospital room so it felt and looked like home.Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care.Her father credits Claire with teaching him "to not be afraid of what hasn't happened yet" and to learn to "love what is. The years of telling myself I can do it on my own are over. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. Im not an innocent and Im not a child. 2:33 PM EDT, Tue September 4, 2018. On Monday afternoon, her mother received word that Claire had already made a difference. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. Claire Wineland's greatest wish, her mother said, was that "her foundation will live on, even in her absence.". I use to live half time with my dad and half with my mom, but since I got sick we . She'd work on a book -- promising it wouldn't be "another happy sick person book" -- and appreciate the small things like swims in the ocean for as long as she was able.Ata TEDx talkshe gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. Chelsi Smith Age, Death, Husband, Family, Biography & More, Uriah Shelton Height, Weight, Age, Girlfriend, Biography, Family, Facts, Net Worth & More, Mary Patrux Height, Age, Husband, Family, Biography & More, Grant Gustin Age, Wife, Girlfriend, Biography, Family & More, Wejdene Height, Age, Family, Biography & More, Lee Min-ho Height, Age, Girlfriend, Wife, Family, Biography & More, Alison Brie Height, Age, Boyfriends, Husband, Family, Biography & More, Colt Prattes Age, Wife, Biography, Facts & More, Wendy Pepper Age, Husband, Family, Biography & More, Chris Zylka Age, Height, Girlfriend, Family, Biography & More, Santa Monica College, Santa Monica, California, College Dropout (left her college due to illness), She had lived in Redondo Beach, California, The Princess Bride, Harry Potter, The Mortal Instruments, Beautiful Creatures, Warm Bodies. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. Claire Wineland Dies at 21 After Receiving Lung Transplant Inside Edition 11.4M subscribers Subscribe 69K 2.8M views 4 years ago #InsideEdition YouTuber Claire Wineland, who chronicled. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. Her survival inspired her to start- Claires Place Foundation, a, She was proficient in American sign language.. This time, she was raw and allowed herself to cry. "It's a GO!!!" Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. "It's not for me and never has been. Wineland appeared in an episode of the American teen medical comedy-drama TV series, Red Band Society. She also made an appearance in the documentary series, My Last Days, which was created by actor Justin Baldoni. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. She founded the non-profit Claire's Place Foundation to provide emotional and financial support to families living with cystic fibrosis. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. She sat in an educational meeting at UC San Diego Healths transplant center and diligently took notes. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. Claires parents learned to trust their independent and strong-willed daughter. The BBC is not responsible for the content of external sites. Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. Anna May Wong Cause of Death, Age of Death, and Other Facts! She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. Im just really overwhelmingly grateful for all of this. Claire, who understood the importance of organ donation, was a donor herself. She'd travel, answer calls for speaking engagements and put energy intoher foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. "Its been a very long few days and I wanted to give everyone an update on how Claire is doing", "Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball', "Who Is Claire Wineland? Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. Read about our approach to external linking. "[12] She died on September 2, 2018, at UC San Diego Thornton Pavilion. The Times-Picayune. CNN Sans & 2016 Cable News Network. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. real family is great. Jessy Dixon Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. She took great care to decorate her hospital room so it felt and looked like home. She decorated her hospital room, and posted inspirational messages on its walls. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). [7], Wineland was chosen to be the keynote speaker at AARC Congress, the 63rd International Respiratory Convention and Exhibition. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure.There is no cure, but dutiful breathing treatments -- which eat up hours each day -- can help with symptoms and complications. She starred in the CW series My Last Days, which features real people with life-threatening illnesses. She founded her own company at 13. What happened in the Ukraine helicopter crash? It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. "Life isn't just about being happy. Biography - A Short Wiki Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. Claire Wineland, who inspired millions on YouTube chronicling her cystic fibrosis battle, has died after a lung transplant By Kyle Swenson September 4, 2018 at 3:58 a.m. EDT YouTube star. She once escaped from the hospital so she could attend a Bernie Sanders rally. She needed financial help. ! she posted on Twitter, not long before she was wheeled into the operating room in San Diego. Senior producer, Legacy.com. A quarter of Claire's life was spent in the hospital. I'm not an innocent and I'm not a child," she wrote in March. The cause of death was a massive stroke she suffered soon after the transplant surgery. She is dynamic and so soul filled, a little angel, rest in Peace Claire, YOU are MY HERO, Your email address will not be published. It was released on the first anniversary of Wineland's death. Claire Wineland was born on April 10, 1997, in Austin, Texas. Claire Wineland as a kid She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. In April 2010, after a routine surgery, Wineland had an infection which led to lung failure. What happened in the Ukraine helicopter crash? She played hide-and-seek with nurses and left explosions of glitter in her wake. What if they poured everything into her transplant, and she didnt make it or was not able to work again, she explained later. [5] She enjoyed performing from a young age and appeared in The Music Man at age four. Menu. Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. "I've struggled more with guys, depression drugs, family and career than I ever have with my illness. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. She was a Fox Teen Choice Award honoree in 2015[14] and received the Gloria Barron Prize for Young Heroes[3]and Los Angeles Business Journal's Small Nonprofit of the Year Award in 2014.[15]. Dave Thomas Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She appeared in an episode of Red Band Society and in the documentary series My Last Days. Recipient of Los Angeles Business Journals Small Nonprofit of the Year, the foundation provides grants to families affected by CF, offering both emotional and financial support. "I didn't realize how much I didn't expect to live this long. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. 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